Pokhala ndi matenda ashuga, ndidabereka mwana, kuteteza maganizo awo ndikupita kumayiko ambiri. Mafunso ndi Mtsogoleri wa DiaChallenge Project on the Diabetes

Pa Seputembala 14, YouTube idzayambitsa ntchito yapadera - chiwonetsero choyamba chenicheni chobweretsa anthu pamodzi ndi matenda amtundu 1. Cholinga chake ndikuphwanya anthu okhudzana ndi matendawa ndi kunena zomwe zingasinthe moyo wa munthu wodwala matendawa kuti akhale wabwinoko. Tidafunsa omwe akutenga nawo gawo ku DiaChallenge Daria Sanina kuti afotokozere zomwe adakambirana zokhudza polojekitiyi.

Dasha, chonde tiuzeni za inu. Kodi muli ndi matenda ashuga bwanji? Mukutani? Kodi mudakumana bwanji ku DiaChallenge ndipo mukuyembekeza chiyani?

Ndili ndi zaka 29, shuga wanga ali ndi zaka 16. 15 mwa iwo sindinatsatire shuga (shuga wamagazi - pafupifupi. ed.) ndikukhala pamalingaliro akuti "ndidzakhala nthawi yayitali bwanji - ndidzakhala moyo bwanji." Koma moyo wathunthu, kwathunthu. Zowona, moyo wabwino sunali ntchito. Kupweteka kwa mwendo, kukhumudwa, kusweka kwa chakudya, mavuto ndi kugaya kwam'mimba. Anakulitsa insulin m'maso. XE sanawerenge. Mwa chozizwitsa china chake, ndidakwanitsa kukhalabe ndi moyo mpaka lero. (Ndingachite bwanji izi?) Ndikuganiza kuti ndidathandizidwa ndi oponyera ziwiya zomwe amayi anga adaziyika (ndi dotolo), chidwi changa cha masewera, zothandizira moyo komanso mngelo wosamalira bwino. Ndili ndi bizinesi yaying'ono yokopa. Posachedwa, ndakhala ndikutsata tsamba pa Instagram pomwe ndimawauza ndikuwonetsa kuti shuga si chiganizo.

Mu Seputembara 2017, ndidayika pampu ya insulin, popeza ndidawona kutsatsa kwa kukhazikitsidwa kwaulere pa Instagram ndipo ndimakhulupirira kuti pampu ndiwopanda matenda ashuga ndipo zinditengera chilichonse. Chifukwa chake - izi ndizolakwika kwathunthu! Ndidayenera kulembetsa pasukulu ya matenda ashuga kuti ndidziwe momwe pampu imagwirira ntchito, ndikuyambiranso matenda ashuga komanso thupi langa. Koma ndidalibe chidziwitso chokwanira, ndimakonda kusokosera (kuchokera ku liwu loti "hypoglycemia", zomwe zikutanthauza kuti shuga yochepetsa magazi - pafupifupi. ed.,, adalemera ndikufuna kuchotsa pampu.

Patsamba la opanga ma satelayiti, ndidawona zambiri zokhudzana ndi projekiti ya DiaChallenge, yomwe inali yofunika kwambiri kwa ine, chifukwa ndimakonda maulendo. Inde, ndizomwe ndimaganiza pomwe andisankha - ulendo. Koma sindinkaganiza kuti ulendo uwu ukasintha moyo wanga, zizolowezi zanga zakudya, njira yanga yophunzitsira, ndiphunzitse momwe ndingasankhire ma insulin, osawopa kukhala ndi matenda ashuga komanso, nthawi yomweyo, kusangalala ndi moyo.

Kodi okondedwa anu, abale ndi abwenzi anu adakumana ndi chiyani atazindikira kuti mwazindikira? Kodi munamva bwanji?

Manjenjemera. Zowonadi, zinali zododometsa.

Ndinali ndi zaka 12, mwezi umodzi 13. Ndinayamba kumwa madzi ambiri, kuthamangira kuchimbudzi mkalasi ndikudya chilichonse. Nthawi yomweyo, ndinali mtsikana wamba woonda. Sindinadwale, sindinadandaule, ndipo kwakukulukulu, palibe chomwe chimadwala.

Nditayamba kuthamangira kuchimbudzi kangapo katatu pa phunziroli, ndinayamba kuganiza kuti china chake chalakwika. Ndimakumbukirabe bomba lomwe linali kuchimbudzi ndi momwe ndimamwa madzi kuchokera pamenepo mu malita, anali madzi okoma kwambiri padziko lapansi ... Ndipo ndidayenera kudandaula kwa mayi anga.

Amayi adandilembera ku chipatala, ndikupereka magazi. Ndinadumpha tsiku lomwelo. Zinali zoyera buzz !! Namwino adandiwuza kuti ndisadalire maswiti ndikudikirira zotsatira. Ndinapita kukadzigulira ndekha ndi mbewu za poppy, zokutidwa ndi chokoleti (ndinali ndi maximalism a ana, sindinamvere aliyense). Ndinkakhala kunyumba, kudula chopendekera ndipo ndinali wokondwa kwambiri kuyambira mwayi - kudumphira sukulu. Kenako amayi anga adayamba kuthamanga ndikuwunika - 12 mmol yokhala ndi 4-6 mmol - ndipo adati: "Konzeka, tipita kuchipatala, uli ndi matenda ashuga."

Sindinamvetse chilichonse, ndine wathanzi, palibe chomwe chimandipweteka, bwanji ndili kuchipatala? Chifukwa chiyani amandipatsa madonsi, kundiletsa kudya maswiti ndi jakisoni ndisanadye? Ndiye inde, ndinadabwitsanso.

.Kodi pali chilichonse chomwe mumalota koma osatha kuchita chifukwa cha matenda ashuga?

Ayi. Maloto anga onse adzakwaniritsidwa, ndipo matenda ashuga si cholepheretsa mu izi, koma othandizira. Matenda a shuga ayenera kuphunziridwa kumwa. Nafe (anthu omwe ali ndi matenda ashuga - pafupifupi. ofiira.) palibe insulin yokha, ndipo china chilichonse chimangokhala chifukwa chosowa kulanga komanso kusazindikira.

Kodi ndi malingaliro olakwika ati okhudzana ndi matenda ashuga komanso omwe mudakumana nawo ngati mukudwala matenda ashuga?

Ndisanakhometse pampu ndikuponyera kudziko lapansi la anthu odwala matenda ashuga, ndimaganiza kuti onse anali odzaza. Zomwe ndidadabwitsidwa nditazindikira kuti pali akatswiri othawa matenda ashuga pakati pa akatswiri othamanga komanso ochita masewera olimbitsa thupi, komanso kuti shuga si cholepheretsa thupi lokongola, koma ulesi.

Ndisanakumane ndi atsikana pa projekitiyo (Olya ndi Lena), ndimaganiza kuti kubereka matenda ashuga ndizovuta kwambiri kuti ndikangopanga pakati, ndimatha kuchotsedwa mu moyo wanga chaka chonse, chifukwa ndizikhala kuchipinda chachipatala. Uku ndi malingaliro olakwika akulu. Ndi shuga, amawuluka / amasuka / amasewera masewera ndipo amakhala chimodzimodzi ngati amayi apakati omwe alibe shuga.

Wizard wabwino atakuitanirani kuti mukwaniritse zomwe mukufuna, koma osakupulumutsani ku matenda ashuga, mungakonde?

Cholinga changa chachikulu ndi kukhala pafupi ndi nyanja kapena nyanja.

Munthu yemwe ali ndi matenda ashuga posachedwa amatopa, azidandaula za mawa ngakhale kukhumudwa. Nthawi ngati izi, thandizo la abale kapena abwenzi ndilofunikira kwambiri - mukuganiza kuti liyenera kukhala lotani? Mukufuna kumva chiyani? Kodi tingatani kuti muthandizedi?

Chinsinsi changa ndi mawu a mayi anga. Komanso, nthawi zonse amakhala ofanana: "Kumbukirani zomwe mudakwanitsa kupulumuka, zina zonse ndizopanda pake, ndinu olimba - mutha kuzichita!"

Chowonadi ndi chakuti zaka 7 zapitazo m'moyo wanga panali kesi, zokumbukira zomwe zimandidabwitsa kwambiri ndikayamba kudandaula. Mbali yanga yakumanzere yam'mimba idayamba kupweteka kwambiri. Pakupita mwezi umodzi, adanditengera ku zipatala zonse pafupi ndi nyumbayo, kuyesa ma ultrasound, ndikuyesera. Choyamba, madokotala akamva za kupweteka kwam'mimba m'matenda a shuga, kukayikirana kumagwera pamatenda a kapamba ndi impso. Sanapeze chilichonse chonga chimenecho. Ndinaleka kudya kwathunthu, ndipo ndinayamba ketoacidosis, yomwe imayendera limodzi ndi zowawa mthupi lonse, makamaka m'mimba, ndipo ndinali nayo kale. Zinkawoneka kuti ndikusiya malingaliro. Sizinawonekere kwa ine ndekha, ndichifukwa chake andiitanira kwa sing'anga, adandipempha kuti ndidye, ndipo ndidandipempha kuti ndichite kena kake ndi zowawa izi. Ndipo ine adanditengera kwa azachipatala. Lamlungu, madzulo, dotolo akuyimbira amapeza chotupa cham'mimba mwanga. Tinthu tating'onoting'ono tomwe nthawi zambiri sitigwiritsa ntchito. Ndipo mwina mungatero, kuyimbira wazamankhwala. Ndipo pansi paudindo wanga, adadula 4 masentimita a chotupa chovuta. Anesthesia, acetone ikupitilirabe kundiwotcha mkatikati, ndipo ndikupita ku chipatala chachikulu. Amayi anga adangovomereza kuti adauzidwa kuti mwana wawo wamkazi satsalira mwana wawo wamkazi mpaka m'mawa. Palibe, adapulumuka. Kwa miyezi ingapo sindinatuluke pakama, ogwetsedwera-koloko, ndinaphunziranso kudya, kuyendanso, kutayika 25 kg. Koma adakhalanso ndi moyo. Pang'onopang'ono, mothandizidwa ndi abale.

Malingaliro anga pazikhalidwe asintha. Ndinkakhala ndi mwayi wokhala ndi moyo, si aliyense amene akanatha kuwupatsa. Ndilibe ufulu wotaya kapena osalimbana ndi zamkhutu izi, zodzimvera chisoni.

Kodi mungalimbikitse bwanji munthu yemwe wapeza kumene za matenda akewo koma osavomereza?

Ngati mukufuna kukhala ndi moyo, zichite. Chilichonse chili m'manja mwanu.

Zinanditengera zaka 15 kuti ndilandire matenda anga a shuga. Kwa zaka 15 ndidazunza, amayi ndi okondedwa. Sindinalandire ndipo sindimamva bwino! Ngakhale ndimafunitsitsadi kuti ndikhulupirire.

Osataya nthawi yanu! Si aliyense amene ali ndi mwayi ngati ine. Chaka chovomerezeka ndikokwanira kuti wina akhale olumala kwa moyo wawo wonse.

Yang'anani kwa anthu ena odwala matenda ashuga! Lowani pagulu, kukumanani, kulumikizana, kuthandizira ndikufanana ndi inu, ndipo nthawi zina chitsanzo, chowonadi chimathandiza!

Phunzirani kuseka nokha, pazochitika zina. Ndipo muzingomwetulira nthawi zambiri!

Kodi chilimbikitso chanu chotenga nawo gawo ku DiaChallenge ndi chiani?

Cholinga: Ndikufuna kubereka ana athanzi ndikukhala ndi moyo wokalamba, ndiphunzire kuthana ndi mavuto anga ndikuwonetsa mwa chitsanzo changa kuti sizinachedwe kusintha moyo wanga kukhala wabwino.

Kodi chovuta kwambiri pa polojekiti ndi chiyani chomwe chinali chosavuta?

Ndikosavuta kuphunzira kulanga: samalani tsiku ndi tsiku kuti musadziletse, musadye chakudya chochuluka, sonkhanitsani zotengera ndikuganiza zakudya mawa, phunzirani kuwerengera ndikusunga zopatsa mphamvu tsiku ndi tsiku.

Nditapima kafukufuku wamaso kumayambiriro kwa ntchitoyi, ndinapeza zovuta m'maso mwanga, ndinayenera kuchita laser ndikuwotcha ziwiya kuti zotchinga zisadzapikenso pambuyo pake. Izi sizoyipa komanso zovuta kwambiri. Zinali zovuta kupulumuka chifukwa chosowa masewera pachipatala.

Zinali zovuta kufa ndi njala kwa maola 6-8 kuchipatala akafufuza malo anga. Ndikosavuta kuyang'ana koyambira ndikudziyesa nokha. Ndipo zinali zovuta kusiya kufunsa mafunso kwa endocrinologist wa polojekitiyi, pomwe gawo la ntchito yodziyimira payokha liyamba, kupulumuka chisokonezo ndi otenga nawo mbali, akatswiri, komanso ogwira ntchito mufilimu.

Koma chosavuta ndikutenga nthawi Lamlungu lililonse komwe mumamvetseka.

Dzinalo la polojeketi lili ndi liwu lakuti Challenge, lotanthauza "chovuta". Kodi mudakumana ndi vuto lotani mutatenga nawo gawo pa DiaChallenge, ndipo zidabweretsa chiyani?

Ndidatsutsa ulesi wanga komanso mantha anga, ndidasintha moyo wanga wonse, malingaliro anga okhudzana ndi matenda ashuga ndipo ndidayamba kulimbikitsa anthu onga ine.

ZAMBIRI ZA PANGANI

Ntchito ya DiaChallenge ndiyophatikiza mitundu iwiri - zolemba ndi zowonetsera zenizeni. Adasankhidwa ndi anthu 9 omwe ali ndi vuto la matenda ashuga a mtundu woyamba: aliyense wa iwo ali ndi zolinga zawo: wina amafuna kuphunzira momwe angalipirire matenda ashuga, wina amafuna kuti akhale wokwanira, ena adathetsa mavuto amisala.

Kwa miyezi itatu, akatswiri atatu adagwira ntchito ndi omwe atenga nawo polojekiti: katswiri wama psychologist, endocrinologist, ndi mphunzitsi. Onsewa ankakumana kamodzi pa sabata, ndipo munthawi yochepayi, akatswiri adathandizira otenga nawo mbali kudzipangira tepi ndikuyankha mafunso omwe amawafunsa. Ophunzira adadzitha okha ndikuphunzira kusamalira matenda awo a shuga osati m'malo opanga malo okhala, koma mwa moyo wamba.

"Kampani yathu ndi yokhayo ku Russia yopanga magazi a glucose metres ndipo chaka chino ndi chaka cha 25. Pulojekiti ya DiaChallenge idabadwa chifukwa timafuna kuthandiza pachitukuko chamagulu azikhalidwe. Tikufuna thanzi pakati pawo kuti abwere kaye, ndipo izi ndi zomwe pulojekiti ya DiaChallenge imayambira. Chifukwa chake, kungakhale kofunika kuti musangowonera anthu omwe ali ndi matenda ashuga komanso abale awo, komanso kwa anthu omwe siali ndi matendawa, "akufotokoza Ekaterina.

Kuphatikiza pakuperekeza endocrinologist, wama psychologist ndi mphunzitsi kwa miyezi itatu, otenga nawo mbali amalandila zida za Satellite Express zodziyang'anira miyezi isanu ndi umodzi ndikuyang'aniridwa kwathunthu kwachipatala kumayambiriro kwa ntchitoyi ndikutha. Malinga ndi zotsatira za gawo lirilonse, wogwira nawo ntchito kwambiri komanso wogwira mtima amapatsidwa mphotho ya ndalama ruble 100,000.

Mfundo yoyamba ya polojekitiyi yakonzekera Seputembara 14: lowani DiaChallenge Channelkuti musaphonye gawo loyamba. Kanemayo amakhala ndi zigawo 14 zomwe zidzaikidwa pa intaneti sabata iliyonse.

DiaChallenge trailer

Matenda A shuga - Banja Labwino Kwambiri. cholembedwa

"Popeza ndili ndi matenda ashuga, ndinabereka mwana, kuteteza malingaliro awo ndikupita kumayiko ambiri." Mafunso ndi Mtsogoleri wa DiaChallenge Project on the Diabetes

Pa Seputembala 14, YouTube idayambitsa ntchito yapadera, kuwonetsa koyamba kuti abweretse anthu omwe ali ndi matenda ashuga a mtundu woyamba. Cholinga chake ndikuphwanya anthu okhudzana ndi matendawa ndi kunena zomwe zingasinthe moyo wa munthu wodwala matendawa kuti akhale wabwinoko. Tidafunsa Olga Schukin, yemwe akutenga nawo gawo pa DiaChallenge, kuti agawire nafe za nkhaniyo komanso malingaliro ake polojekitiyi.